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PR: 6
Sturge-Weber Syndrome Community
Organization for individuals and families affected by SWS.
http://swscommunity.org/ [Detail ]
 
PR: 6
Adam - An Overview
Subacute sclerosing panencephalitis, a definition and a look at the causes, incidence and risk factors.
http://www.nlm.nih.gov/medlineplus/ency/article/001419.htm [Detail ]
 
PR: 6
National Tay-Sachs and Allied Diseases Association
An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
http://www.ntsad.org/ [Detail ]
 
PR: 6
Tay-Sachs Disease
Discussion on what it is, how it is transmitted, are certain populations at higher risk, is there a test to see if one is a carrier and is there a way to prevent this disease.
http://www.ntsad.org/pages/t-sachs.htm [Detail ]
 
PR: 6
Tourette Syndrome Plus
Information and resources on TS, OCD, ADD, and other neurobehavioral disorders. Special sections on advocacy and parent education, conferences, glossaries, medications, camps, and media coverage of TS.
http://www.tourettesyndrome.net/ [Detail ]
 
PR: 6
Neuroscience for Kids - Tourette Syndrome
Provides definition, descriptions, facts, a list of famous people with TS, a short quiz, and resources.
http://faculty.washington.edu/chudler/ts.html [Detail ]
 
PR: 6
The Facts About Tourette Syndrome
Basic information about Tourette's Syndrome. Includes a list of symptoms classified as either simple or complex.
http://members.tripod.com/~tourette13/ [Detail ]
 
PR: 6
Tourettaville
Musical inspired by a young boy's dream world where 4 aliens and guru of “Tourettians” promote self-acceptance to patients with Tourette Syndrome.
http://www.tourettaville.com/ [Detail ]
 
PR: 6
Guide to the Diagnosis and Treatment of Tourette Syndrome
Information for physicians, psychologists, nurses, and other professionals who wish to become more knowledgeable about Tourette Syndrome. Published by the Tourette Syndrome Association.
http://www.mentalhealth.com/book/p40-gtor.html [Detail ]
 
PR: 6
Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
http://www.tsalliance.org/ [Detail ]
 
PR: 6
Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
http://www.tuberous-sclerosis.org/ [Detail ]
 
PR: 6
A-Z Deafblindness
An in depth article by Mary Guest, Head of Usher Services at Sense, about Usher syndrome. Includes detailed description of what it is, the symptoms, genetics, transmission, the problems associated with it and what can be done.
http://www.deafblind.com/usher.html [Detail ]
 
PR: 6
Velo-Cardio-Facial Syndrome Educational Foundation
Details about this organization as well as an extensive fact sheet about the disease. Includes details about support groups, a mission statement and contact information.
http://vcfsef.org/ [Detail ]
 
PR: 6
Williams Syndrome Association
A rare genetic condition (estimated to occur in 1/20,000 births) which causes medical and developmental problems.
http://www.williams-syndrome.org/ [Detail ]
 
PR: 6
Williams Syndrome Foundation
Seeks to create or enhance opportunities in education, housing, employment and recreation for people who have Williams Syndrome and other related or similar conditions.
http://www.wsf.org [Detail ]
 
PR: 6
Williams Syndrome
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/williams/williams.htm [Detail ]
 
PR: 6
Xeroderma Pigmentosum Society
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
http://www.xps.org [Detail ]
 
PR: 6
Understanding Xeroderma Pigmentosum
Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]
http://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf [Detail ]
 
PR: 6
Genetic and Rare Conditions
Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.
http://www.kumc.edu/gec/support/ [Detail ]
 
PR: 6
MedlinePlus - Hemorrhoids
Offers informational links to hemorrhoid related sites.
http://www.nlm.nih.gov/medlineplus/hemorrhoids.html [Detail ]
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